How Do I Participate
PatientsWhat is a Registry? About Lysosomal Acid Lipase Deficiency (LAL-D) How Does the Registry Work? Why Participate?
How Do I ParticipateRegistry Sponsor Patient Organizations
Participation in the LAL-D Registry is voluntary. If you want to take part, you should speak to the doctor who is managing your LAL-D. He or she can explain the program to you, and will ask you to sign an Informed Consent Form (ICF) that authorizes your doctor to enter your information into the Registry database.
You can stop participating at any time. If you decide not to take part, your decision will not affect the medical care you receive. If you would like to leave the LAL-D Registry, you must tell your Registry Doctor.
* Patient image is hypothetical