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What is a Registry? About Lysosomal Acid Lipase Deficiency (LAL-D) How Does the Registry Work? Why Participate? How Do I Participate Registry Sponsor Patient Organizations

If you have any questions on the LAL-D Registry please contact
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How Do I Participate

Patients

What is a Registry? About Lysosomal Acid Lipase Deficiency (LAL-D) How Does the Registry Work? Why Participate?

How Do I Participate

Registry Sponsor Patient Organizations

Participation in the LAL-D Registry is voluntary. If you want to take part, you should speak to the doctor who is managing your LAL-D. He or she can explain the program to you, and will ask you to sign an Informed Consent Form (ICF) that authorizes your doctor to enter your information into the Registry database.

You can stop participating at any time. If you decide not to take part, your decision will not affect the medical care you receive. If you would like to leave the LAL-D Registry, you must tell your Registry Doctor.

 

LAL-D Registry Participation

* Patient image is hypothetical

What is a Registry?

About Lysosomal Acid Lipase Deficiency (LAL-D)

How Does the Registry Work?

Why Participate?

Registry Sponsor

Patient Organizations

Sponsored by Alexion

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