Skip navigation
Patients
What is a Registry? About Lysosomal Acid Lipase Deficiency (LAL-D) How Does the Registry Work? Why Participate? How Do I Participate Registry Sponsor Patient Organizations

If you have any questions on the LAL-D Registry please contact
Alexion Medical Information via email at medinfo@alexion.com

You are now leaving laldregistry.com, a website provided by Alexion Pharmaceuticals, Inc. This link will take you to a different site to which this Privacy Notice does not apply.
CONFIRM CLOSE

Registry Sponsor

Patients

What is a Registry? About Lysosomal Acid Lipase Deficiency (LAL-D) How Does the Registry Work? Why Participate? How Do I Participate

Registry Sponsor

Patient Organizations

The LAL-D Registry was created in 2013 by Synageva BioPharma Corp. This company was purchased by Alexion Pharmaceuticals Inc. (Alexion) in 2015. Alexion is the sponsor of the LAL-D Registry, the collection and management of data, and the analyses, presentation and publication of the LAL-D Registry data. In addition, the LAL-D Registry will be overseen by a Scientific Board of Advisors, comprised of physicians involved in the research or care of patients with LAL-D. The Scientific Board of Advisors will collaborate with the sponsor to define the scientific direction of the LAL Deficiency Registry, and support analysis and publication of information about the disease and its treatment.

For more information, please visit: https://clinicaltrials.gov/ct2/show/NCT01633489

What is a Registry?

About Lysosomal Acid Lipase Deficiency (LAL-D)

How Does the Registry Work?

Why Participate?

How Do I Participate

Patient Organizations

Sponsored by Alexion

Privacy NoticeLegalTerms of UseSitemapContact Us

ALEXION and the Alexion logo are registered trademarks of Alexion Pharmaceuticals, Inc.

M/GL/NP/0008 3/22

All images provided are hypothetical and all imagery is provided by Getty Images

© 2022 Alexion Pharmaceuticals, Inc. All rights reserved